On February 28th the European Parliament Committee on Public Health (SANT) launched a public consultation on rare diseases.
The purpose of this public consultation is to provide a basis for the forthcoming work of the Public Health Committee to gain a better understanding and detailed knowledge of the challenges faced by people affected by rare diseases and the views of people working with or involved in rare diseases.
The online survey survey is voluntary and anonymous and can be filled in by all interested parties until 31 March, contribute!