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Charter for Optimal Transitions from Paediatric to Adult Care in Sickle Cell Disease.

2025-06-24
Charter for Optimal Transitions from Paediatric to Adult Care in Sickle Cell Disease.

The Charter for Optimal Transitions from Paediatric to Adult Care in Sickle Cell Disease was launched alongside the EHA conference in Milan on 12 June!

The presence and contributions of the Policy Lab Members helped make the launch in Milan a powerful milestone! Insightful discussions with patients, clinicians and advocates inspired new thinking and strengthened your resolve to push for lasting change in transition care across Europe. The Sickle Cell Policy Lab is led by the European Sickle Cell Federation (ESCF) and ERN-EuroBloodNet.

It represents a consensus on the principles, expectations, and system-level actions necessary to improve the transition from pediatric to adult care and ensure improved outcomes for individuals living with Sickle Cell Disease.

We are looking forward to amplifying the Charter's pledge and recommendations to a broader audience this October, with the goal of driving sustainable, system-level change for the SCD community.

“While some centres offer comprehensive, structured programmes, others leave families to navigate this complex shift alone, creating inequalities in care.2 And SCD is not alone in this challenge. Young people with chronic and rare diseases face similar barriers, making this a pressing, cross-cutting issue in health policy.”

Find out more about Sickle Cell Disease, what "transition" means, why transitioning into adult health and social care services is so important, when it should happen, and much more - all in this incredible charter!

Download the Charter here: English version (French, Spanish and Italian translations will be available soon)