Register now for the webinar “Improving Rare Disease Care in Ukraine: Access to European Reference Networks (ERNs) and Expert Resources”, which will take place online on Wednesday, 18 February, from 16:00 to 17:45 CET / 17:00 to 18:45 EET.
This collaborative webinar is co-organised by Endo-ERN (the ERN on Rare Endocrine Conditions) & ERN eUROGEN (the ERN for rare uro-recto-genital diseases and complex conditions), and aims to support Ukrainian clinicians by highlighting access to European Reference Networks and expert resources for rare disease care.
This joint webinar will explore how Ukrainian clinicians and patient representatives can collaborate with European Reference Networks (ERNs) to strengthen rare disease care. The program will introduce the ERN system, feature insights from Endo-ERN and ERN eUROGEN, and outline how to engage through the Clinical Patient Management System (CPMS).
The event will be held via Zoom in English, with live Ukrainian captions available. Find out more about the details of the program and register HERE!