Launch of Rare Barometer survey results: The mental health of people living with a rare or undiagnosed condition and their family members
The latest insights from the EURORDIS Rare Barometer survey be presented during a webinar on 18 June 2026.
The findings from our most recent Rare Barometer survey will be presented during the webinar "Living well: The mental health of people living with a rare or undiagnosed condition and their family members", led by Jessie Dubief, EURORDIS Social Research Director and Rare Barometer Programme Lead.
More than 10,700 people participated in the survey worldwide, including nearly 9,900 in Europe. The results highlight key findings on the mental health and wellbeing of people living with a rare or undiagnosed condition and their family members, the factors that impact them most, and the support they receive to help improve their wellbeing.
Join to explore what the new findings reveal, and how they can help shape rare disease policy discussions across Europe.
Date: 18 June 2026.
Time: 15:00-17:00 CEST.
Registrations: HERE.