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ERN-EuroBloodNet Webinars adressed to RHD patients and patients organisations

ERN-EuroBloodNet Webinars adressed to RHD patients and patients organisations

Patients' education is fundamental for a correct management of the disease, navigate health care systems, guarantee a good quality of life. Therapeutic Patients Education could indeed reduce morbidities and mortality.

This is why the ERN-EuroBloodNET is establishing an online educational program addressed to patients and patients organizations.

EuroBloodNet's Patients Webinars are led by experts in the field of Rare Hematological Diseases, health professionals and/or patients representatives. This program consist of a series of webinar called Topic on Focus or one single webinar named Patient Webinar  that provides patients community, patients' organisations, caregivers and health professionals with highly specialized knowledge on a specific Rare Hematological disease or groups of disease. In addition, it allows to tackle questions gathered from the audience in real time, providing the perfect environment to benefit from the most  outstanding experts in the field. 

Webinars are recorded and available on the ERN-EurobloodNet YouTube EDU channel

Patients Associations Involved so far:

L'association Connaître et Combattre les Myélodysplasies

Lymphoma Coalition

France Lymphoma Espoir

Cutaneous Lymphoma Foundation

EURORDIS

Euro Blood Net