Patients' education is fundamental for a correct management of the disease, navigate health care systems, guarantee a good quality of life. Therapeutic Patients Education could indeed reduce morbidities and mortality.
This is why the ERN-EuroBloodNET is establishing an online educational program addressed to patients and patients organizations.
EuroBloodNet's Patients Webinars are led by experts in the field of Rare Hematological Diseases, health professionals and/or patients representatives. This program consist of a series of webinar called Topic on Focus or one single webinar named Patient Webinar that provides patients community, patients' organisations, caregivers and health professionals with highly specialized knowledge on a specific Rare Hematological disease or groups of disease. In addition, it allows to tackle questions gathered from the audience in real time, providing the perfect environment to benefit from the most outstanding experts in the field.
Webinars are recorded and available on the ERN-EurobloodNet YouTube EDU channel
Patients Associations Involved so far:
