(April 7-9, 2020)-Project was postponed because of COVID19 pandemic outbreak
ERN-EuroBloodNet has organized two patients session for the 4th Global Congress on Sickle Cell Disease that would haven taken place at UNESCO in Paris, on April 7-9, 2020. This congress would bring together medical experts and researchers experienced in Sickle Cell Disease from around the world. During the congress, two sessions would have been dedicated to patient testimony; they would have last 2 hours each, that is to say 4 presentations of patient testimony of 20 minutes each + 10 minutes of audience questions.
Project was blocked because of the pandemic outbreak.
Patients associations Involved in the action:
Global Alliance of Sickle Cell Disease Organizations (GASCDO)