The dissemination of activities and outcomes achieved by the ERNs is a cornerstone to ensure a wide impact among the Rare disease community, including health professionals, patients and other stakeholders. In 2020, ERN-EuroBloodNet actions and results have been presented acknowledging the ERN in the following events:
| Date of the Event | Slot in the Agenda | Event | Emplacement of the Event | Representatives |
|---|---|---|---|---|
| 10th January 2020 | Establishment of an European Network of Sickle Cell Disease Patients Organizations | GASCDO Inaugural face-to-face meeting | The Netherlands | Mariangela Pellegrini |
| 18th February 2020 | ERN-EuroBloodNet activities | European Network of Sickle Cell Disease Patients Organizations - Spanish and Portuguese National Meeting | Spain | Mariangela Pellegrini, María del Mar Mañú Pereira and Victoria Gutiérrez Valle |
| 20th February 2020 | ERN-EuroBloodNet activities | 3rd ERN-EuroBloodNet Meeting of Italian Healthcare Providers | Italy | Healthcare Providers Italian Members Representatives |
| 22nd February 2020 | ERN-EuroBloodNet | European Reference Networks Meeting for Rare Disease Day | Italy | Antonella Meloni |
| 5th March 2020 | ASCAT Workshop results + The Establishment of The Sickle Cell Disease Patients Organisation | 2020 Belgian Meeting on Red Blood Cell Disorders for Scientists and Patients | Belgium | Mariangela Pellegrini |
| 5th March 2020 | The role of ERNs in enabling cross border (clinical) research on Rare Diseases | Malta Association of Biomedical Scientists (Thalassaemia International Day) | Online | María del Mar Mañú Pereira |
| 1st July 2020 | ENROL Kick off meeting | ENROL Kick off meeting | Online | |
|
4th November 2020 |
Filière MARIH: RENCONTRE INTER-ASSOCIATIVE MARIH5, Meeting annuel Nationale | Maladies Rares: Point de Vue de l'Europe | Online | Mariangela Pellegrini |
| 14th November 2020 | Filière MCGRE: Journée des associations, Meeting annuel Nationale | Le réseau européen EuroBloodNet et les patients | Online | Mariangela Pellegrini |
| 22nd November 2020 | 4th Board of Network meeting | 4th Board of Network meeting | Online | |
| 4th December 2020 | ESCF: Capacity Building, Learning and Networking Webinar | The ERN-EuroBloodNet Platform for Sickle Cell Disease Patients Advocacy and Education | Online | Mariangela Pellegrini |
| 8th December 2020 | Panel discussion: Bridging the Gap Between Innovation and Patients | “Preparing Europe For Novel Cell and Gene Therapies” Launch Event of the European Alliance for Transformative Therapies | Online | Béatrice Gulbis |
| 16th December 2020 | Modelo europeo de unidades referencia (ERN-EuroBloodNet) | Diagnóstico y Manejo de las Enfermedades Raras en Eritropatología, Abordaje Multidisciplinar, Modelo de Atención en un Centro de Referencia | Online | María del Mar Mañú Pereira |