Consisted of 18 health professionals specializing in CL and 3 patients organizations covering CL who are engaged in several EuroBloodNet initiatives like regular meetings in Clinical Patient Management System to consult rare and complex CL cases, and Topic on Focus Educational Webinars for health professionals or patients organizations.
Cutaneous Lymphoma Virtual Board of European Experts has been established to provide expertise in different identified and agreed initiatives, to cover the needs due to the ultra-rare prevalence using the facilities provided by ERN:
Country | Expert | Healthcare Provider | Membership |
---|---|---|---|
AU | Robert Knobler | Medical University of Vienna | Affiliated Partner |
DE | Ulrike Wehkamp | Universitätsklinikum Schleswig-Holstein | Supporting Partner |
DE | Rudolf Stadler | Johannes Wesling Medical Centre | Supporting Partner |
DE | Christina Mitteldorf | Universitätsklinikum Göttingen | Supporting Partner |
ES | Pablo Ortiz-Romero | Hospital Universitario 12 de Octubre | Supporting Partner |
FR | Marie Beylot-Barry | CHU de Bordeaux | Supporting Partner |
FR | Martine Bagot | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis | Member |
FR | Adèle De Masson | Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis | Member |
IT | Pietro Quaglino | AOU Turin | Supporting Partner |
NL | Maarten Vermeer | Leiden University Medical Center | Member |
NL | J Hendrik Veelken | Leiden University Medical Center | Member |
PL | Anna Dabrowska-Iwanicka | Maria Sklodowska Curie Memorial Institute of Oncology | Member |
PL | Joanna Romejko-Jarosinska | Maria Sklodowska Curie Memorial Institute of Oncology | Member |
PL | Grzegorz Rymkiewicz | Maria Sklodowska Curie Memorial Institute of Oncology | Member |
PT | Margarida Lima | Centro Hospitalar do Porto, EPE | Member |
SW | Emmanuella Guenova | Lausanne University Hospital | Supporting Partner |
SW | Werner Kempf | University Hospital of Zürich | Supporting Partner |
UK | Julia Scarisbrick | University Hospital of Birmingham | Supporting Partne |
Name | Website | Country Coverage | Membership |
---|---|---|---|
Lymphoma Coalition | https://lymphomacoalition.org | International | Supporting partner |
Cutaneous Lymphoma Foundation | International | Supporting partner | |
France Lymphoma Espoir | https://www.francelymphomeespoir.fr | France | Supporting partner |
If you are an official patients' association covering Cutaneous Lymphomas and you want to collaborate in this list to support CL patients in your country, please contact: Mariangela.pellegrini(ELIMINAR)@aphp.fr