ERN-EuroBloodNet Dissemination webinar program

Past webinars

Check below the past webinars to view the material

Innovative Therapies, Unequal Access: Bridging the gap for rare disease treatments. The added value of the ERN-EuroBloodNet

21/02/2025 00:00

Speakers: Mariangela Pellegrini

Target: PatientsHealth professionalsHealth professionals

Subnetworks: Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

View

Satisfy Trial (ERN-EuroBloodNet): PROMs Selection Process. Associating PROMs in PKD in Clinical Trials

12/02/2025 17:00

Speakers: Eduard van Beers

Target: PatientsHealth professionalsHealth professionals

Subnetworks: Red blood cell defects

Disease Groups: Rare constitutional hemolytic anemia due to pyruvate kinase deficiency

View

ERN-EuroBloodNet European mapping on Arterial Thrombosis and Venous Thrombosis in Pediatric patients

21/11/2024 15:00

Speakers: Rubén Berrueco

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

View

Limited access to transcranial doppler screening and stroke prevention for children with sickle cell disease in Europe: Results of a multinational ERN-EuroBloodNet mapping

24/02/2025 11:00

Speakers: Raffaella Colombatti

Target: PatientsHealth professionalsHealth professionals

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

View

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

08/05/2024 08:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups: Transversal

View

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

02/05/2024 17:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups: Transversal

View

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

03/05/2024 13:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups: Transversal

View