ERN-EuroBloodNet Events

May 29, 2026 12:30

Session 4: Opportunities of Synthetic Data Generation in Rare Haematological Diseases

Speakers: María del Mar Mañú Pereira, Eleonora Iascone, Raffaella Colombatti

Target: Patients, Health professionals, Patients organizations

Subnetworks: Myeloid malignancies, Red blood cell defects

Disease Groups: Sickle cell disease and related diseases, Transversal for Myeloid malignancies

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Jun 16, 2026 17:00

Session 5: Safety of CRISPR/Cas9

Speakers: Ayal Hendel, Toni Cathomen

Target: Patients

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

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Jun 24, 2026 17:00

Session 9: Glanzmann thrombasthenia – general aspects of diagnosis and follow-up

Speakers: Mathieu Fiore

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Jun 28, 2026 17:00

Nuova Legislazione Farmaceutica Europea

Speakers: TBC

Target: Patients organizations

Subnetworks: Red blood cell defects

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Jul 15, 2026 17:00

Session 6: Future Developments and CRISPR/Cas9 for SCD

Speakers: Annarita Miccio

Target: Patients

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

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Sep 16, 2026 17:00

Session 10: Glanzmann thrombasthenia – general aspects of treatment (platelet transfusion, rFVIIa, innovative therapies, HSCT)

Speakers: Suthesh Sivapalaratnam

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Oct 02, 2026 17:00

Session 7: Regulatory Path to the Clinic

Speakers: David Morrow

Target: Patients

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

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Oct 14, 2026 17:00

Session 11: Women with Glanzmann thrombasthenia – management of abnormal uterine bleeding and pregnancy (maternal and fetal aspects)

Speakers: Roseline d'Oiron

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Nov 18, 2026 17:00

Session 12: Glanzmann thrombasthenia – management of gastrointestinal bleeding

Speakers: Paolo Gresele

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Dec 16, 2026 17:00

Session 13: Glanzmann thrombasthenia – surgery and invasive procedures

Speakers: Roger Schutgens

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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ERN-EuroBloodNet Events

Upcoming Events

Session 4: Opportunities of Synthetic Data Generation in Rare Haematological Diseases

Session 5: Safety of CRISPR/Cas9

Session 9: Glanzmann thrombasthenia – general aspects of diagnosis and follow-up

Nuova Legislazione Farmaceutica Europea

Session 6: Future Developments and CRISPR/Cas9 for SCD

Session 10: Glanzmann thrombasthenia – general aspects of treatment (platelet transfusion, rFVIIa, innovative therapies, HSCT)

Session 7: Regulatory Path to the Clinic

Session 11: Women with Glanzmann thrombasthenia – management of abnormal uterine bleeding and pregnancy (maternal and fetal aspects)

Session 12: Glanzmann thrombasthenia – management of gastrointestinal bleeding

Session 13: Glanzmann thrombasthenia – surgery and invasive procedures

Euro Blood Net