ERN-EuroBloodNet Events

Sep 10, 2026 17:00

Updated global prevalence and ethnic diversity of von Willebrand disease based on population genetics analysis

Speakers: Omid Seidizadeh

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Von Willebrand disease

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Sep 16, 2026 17:00

Session 10: Glanzmann thrombasthenia – general aspects of treatment (platelet transfusion, rFVIIa, innovative therapies, HSCT)

Speakers: Suthesh Sivapalaratnam

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Oct 02, 2026 17:00

Session 6: Future Developments and CRISPR/Cas9 for SCD

Speakers: Annarita Miccio

Target: Patients

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

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Oct 07, 2026 17:00

Session 1: Understanding the disease

Speakers: Flora Peyvandi, Ilaria Mancini, Andrea Artoni

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Oct 14, 2026 17:00

Session 11: Women with Glanzmann thrombasthenia – management of abnormal uterine bleeding and pregnancy (maternal and fetal aspects)

Speakers: Roseline d'Oiron

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Nov 02, 2026 17:00

Session 2: Diagnosis, treatment and monitoring

Speakers: Flora Peyvandi, Long Zheng, Juri Giannotta, Ada Truma

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Nov 12, 2026 17:00

Session 7: Regulatory Path to the Clinic

Speakers: David Morrow

Target: Patients

Subnetworks: Red blood cell defects

Disease Groups: Sickle cell disease and related diseases

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Nov 18, 2026 17:00

Session 12: Glanzmann thrombasthenia – management of gastrointestinal bleeding

Speakers: Paolo Gresele

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Dec 09, 2026 17:00

Session 3: Living with TTP after an acute episode - daily management

Speakers: Júlia Weisinger

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Dec 16, 2026 17:00

Session 13: Glanzmann thrombasthenia – surgery and invasive procedures

Speakers: Roger Schutgens

Target: Health professionals

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly

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Jan 13, 2027 17:00

Session 4: Special Considerations

Speakers: Barbara Ferrari, Juri Giannotta

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Feb 10, 2027 17:00

Session 5: Mental health and psychosocial support

Speakers: tbc

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Mar 10, 2027 17:00

Session 6: Advocacy and Awareness

Speakers: tbc

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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Apr 14, 2027 17:00

Session 7: Role of AI on predicting relapses

Speakers: Ioana Todorova

Target: Patients

Subnetworks: Bleeding - Coagulation disorders

Disease Groups: Transversal for Bleeding - Coagulation disorders

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ERN-EuroBloodNet Events

Upcoming Events

Updated global prevalence and ethnic diversity of von Willebrand disease based on population genetics analysis

Session 10: Glanzmann thrombasthenia – general aspects of treatment (platelet transfusion, rFVIIa, innovative therapies, HSCT)

Session 6: Future Developments and CRISPR/Cas9 for SCD

Session 1: Understanding the disease

Session 11: Women with Glanzmann thrombasthenia – management of abnormal uterine bleeding and pregnancy (maternal and fetal aspects)

Session 2: Diagnosis, treatment and monitoring

Session 7: Regulatory Path to the Clinic

Session 12: Glanzmann thrombasthenia – management of gastrointestinal bleeding

Session 3: Living with TTP after an acute episode - daily management

Session 13: Glanzmann thrombasthenia – surgery and invasive procedures

Session 4: Special Considerations

Session 5: Mental health and psychosocial support

Session 6: Advocacy and Awareness

Session 7: Role of AI on predicting relapses

Euro Blood Net