ERN-EuroBloodNet, the ERN on Rare Hematological Diseases (RHDs)
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ERN-EuroBloodNet Events

Past Events

Upcoming Events

Session 5: Safety of CRISPR/Cas9

Speakers: Ayal Hendel, Toni Cathomen
Target: Patients
Subnetworks: Red blood cell defects
Disease Groups: Sickle cell disease and related diseases
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Session 1: Mechanisms of platelet activation

Speakers: Loredana Bury
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
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Improve the quality of life for VWD patients

Speakers: Linda Myrin Westesson, Cathy Verbraeken, Annabel Kattai
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Emotional trauma

Speakers: Lotte Haverman, Jo Traunter, Tessa van Gastel
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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VWD in the emergency room

Speakers: Flora Peyvandi, Sunny Maini
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Ageing

Speakers: Giancarlo Castaman, Nicolas Giraud, Catherine Harrison
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Maternity

Speakers: Karin van Galen, Rezan Abdul-Kadir, Jo Traunter, Debra Pollard
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Regulatory framework

Speakers: Nathan Lea
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
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Surgery

Speakers: Flora Peyvandi, Julia Rauscher
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Introductory session (the road so far)

Speakers: Federico Alvarez
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
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People with VWD bleed too

Speakers: Michele Lavin, Dearbhla Dohert, Baiba Ziemele
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Type doesn’t define VWD symptoms

Speakers: Riitta Lassilla, Hannah Yarnall
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Genetics of VWD

Speakers: Frank Leebeek, Jo Traunter
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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MYH9-related disease

Speakers: Jose Rivera Pozo, Maria Luisa Lozano Almela
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
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VWD is not haemophilia

Speakers: Jeroen Eikenboom, Baiba Ziemele
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
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Suspecting inherited thrombocytopenia

Speakers: Maria Luisa Lozano
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
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Data standardization and linkage (Standards & Federation)

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
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Pathogenesis of inherited thrombocytopenia

Speakers: Hana Raslova
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
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Pregnancy for Aplastic Anemia and PNH

Speakers: Britta Höchsmann, Alex Naylor
Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)
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Priapism

Speakers: Rachel Kesse Adu
Target: Patients
Subnetworks: Red blood cell defects
Disease Groups: Sickle cell disease and related diseases
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Understanding Aplastic Anemia

Speakers: Beatrice Drexler, Isabelle Flageul
Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Rare acquired aplastic anemia (Other than PNH)
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CLINICAL CASE: Acquired Aplastic Anemia

Speakers: Britta Höchsmann
Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Rare acquired aplastic anemia (Other than PNH), Paroxysmal nocturnal hemoglobinuria
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Gestational Risk

Speakers: Laure Joseph
Target: Patients
Subnetworks: Red blood cell defects
Disease Groups: Sickle cell disease and related diseases
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Acquired Aplastic Anemia: somatic mutations

Speakers: Austin Kulasekararaj
Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)
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T-Prolymphocytic Leukemia (T-PLL)

Speakers: Olivier Tournilhac
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Indolent B-cell lymphomas / Non follicular
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Marginal Zone Lymphomas

Speakers: Catherine Thieblemont
Target: Health professionals
Subnetworks: Lymphoid malignancies
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SMD et soins de support

Speakers: Aurelien Proux, Pascale Chemli
Target: Patients
Subnetworks: Myeloid malignancies
Disease Groups: Myelodysplastic syndrome
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Drug-associated TMA

Speakers: Steven Grangé
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Chronic Myelomonocytic Leukaemia

Speakers: Raphael Itzykson
Target: Health professionals
Subnetworks: Myeloid malignancies
Disease Groups: Chronic myeloid leukemia
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HSCT-associated TMA

Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Pregnancy-associated HUS

Speakers: Fadi Fakhouri
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Management of atypical HUS

Speakers: Jan Menne
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
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Diagnosis of HUS

Speakers: Eric Rondeau
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
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Shigatoxin-associated HUS

Speakers: Antoine Dossier 
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
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TTP in the elderly

Speakers:  Jehane Fadlallah
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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 Greffe de Moelle dans les SMD

Speakers: Marie Robin, Didier Blaise, Raymond Mallarte
Target: Patients
Subnetworks: Myeloid malignancies
Disease Groups: Myelodysplastic syndrome
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Congenital TTP: diagnosis and future management

Speakers: Johanna Kremer Hovinga Strebel
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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TTP in the setting of pregnancy

Speakers: Marie Scully
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Organ dysfunction in TTP

Speakers: Eric Mariotte
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Animal models of TTP

Speakers: Karen Vanhoorelbeke
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
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Lorem Ipsum

Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Acquired red cell aplasia
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Preimplantation Genetic Testing for Rare Anaemias

Speakers: Marina Kleanthous
Target: Health professionals
Subnetworks: Red blood cell defects
Disease Groups: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Hereditary spherocytosis, Rare constitutional hemolytic anemia due to pyruvate kinase deficiency, Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD), Sickle cell disease and related diseases
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CD30+lymphoproliferations

Speakers: Werner Kempf
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
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Mycosis Fungoides

Speakers: Maarten Vermeer
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
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Introduction to Cutaneous Lymphoma

Speakers: Rein Willemze
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
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Euro Blood Net