ERN-EuroBloodNet, the ERN on Rare Hematological Diseases (RHDs)
Contact us   |  

ERN-EuroBloodNet Events

Past Events

Upcoming Events

Session 1: Mechanisms of platelet activation

Speakers: Loredana Bury
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
View

Improve the quality of life for VWD patients

Speakers: Linda Myrin Westesson, Cathy Verbraeken, Annabel Kattai
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Emotional trauma

Speakers: Lotte Haverman, Jo Traunter, Tessa van Gastel
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

VWD in the emergency room

Speakers: Flora Peyvandi, Sunny Maini
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Ageing

Speakers: Giancarlo Castaman, Nicolas Giraud, Catherine Harrison
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Maternity

Speakers: Karin van Galen, Rezan Abdul-Kadir, Jo Traunter, Debra Pollard
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Regulatory framework

Speakers: Nathan Lea
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
View

Surgery

Speakers: Flora Peyvandi, Julia Rauscher
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Introductory session (the road so far)

Speakers: Federico Alvarez
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
View

People with VWD bleed too

Speakers: Michele Lavin, Dearbhla Dohert, Baiba Ziemele
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Type doesn’t define VWD symptoms

Speakers: Riitta Lassilla, Hannah Yarnall
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Genetics of VWD

Speakers: Frank Leebeek, Jo Traunter
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

MYH9-related disease

Speakers: Jose Rivera Pozo, Maria Luisa Lozano Almela
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
View

VWD is not haemophilia

Speakers: Jeroen Eikenboom, Baiba Ziemele
Target: Health professionals, Patients organizations
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Von Willebrand disease
View

Suspecting inherited thrombocytopenia

Speakers: Maria Luisa Lozano
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
View

Data standardization and linkage (Standards & Federation)

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia
Target: Patients, Health professionals, Patients organizations
Subnetworks: Myeloid malignancies, Red blood cell defects
Disease Groups: Transversal for Myeloid malignancies, Transversal for Red blood cell defects
View

Pathogenesis of inherited thrombocytopenia

Speakers: Hana Raslova
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare hemorrhagic disorder due to a constitutional platelet anomaly
View

Pregnancy for Aplastic Anemia and PNH

Speakers: Britta Höchsmann, Alex Naylor
Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)
View

Priapism

Speakers: Rachel Kesse Adu
Target: Patients
Subnetworks: Red blood cell defects
Disease Groups: Sickle cell disease and related diseases
View

Understanding Aplastic Anemia

Speakers: Beatrice Drexler, Isabelle Flageul
Target: Patients
Subnetworks: Bone marrow failure
Disease Groups: Rare acquired aplastic anemia (Other than PNH)
View

CLINICAL CASE: Acquired Aplastic Anemia

Speakers: Britta Höchsmann
Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Rare acquired aplastic anemia (Other than PNH), Paroxysmal nocturnal hemoglobinuria
View

Gestational Risk

Speakers: Laure Joseph
Target: Patients
Subnetworks: Red blood cell defects
Disease Groups: Sickle cell disease and related diseases
View

Acquired Aplastic Anemia: somatic mutations

Speakers: Austin Kulasekararaj
Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)
View

T-Prolymphocytic Leukemia (T-PLL)

Speakers: Olivier Tournilhac
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Indolent B-cell lymphomas / Non follicular
View

Marginal Zone Lymphomas

Speakers: Catherine Thieblemont
Target: Health professionals
Subnetworks: Lymphoid malignancies
View

SMD et soins de support

Speakers: Aurelien Proux, Pascale Chemli
Target: Patients
Subnetworks: Myeloid malignancies
Disease Groups: Myelodysplastic syndrome
View

Drug-associated TMA

Speakers: Steven Grangé
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Chronic Myelomonocytic Leukaemia

Speakers: Raphael Itzykson
Target: Health professionals
Subnetworks: Myeloid malignancies
Disease Groups: Chronic myeloid leukemia
View

HSCT-associated TMA

Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Pregnancy-associated HUS

Speakers: Fadi Fakhouri
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Management of atypical HUS

Speakers: Jan Menne
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
View

Diagnosis of HUS

Speakers: Eric Rondeau
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
View

Shigatoxin-associated HUS

Speakers: Antoine Dossier 
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Atypical hemolytic-uremic syndrome, Typical hemolytic-uremic syndrome
View

TTP in the elderly

Speakers:  Jehane Fadlallah
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

 Greffe de Moelle dans les SMD

Speakers: Marie Robin, Didier Blaise, Raymond Mallarte
Target: Patients
Subnetworks: Myeloid malignancies
Disease Groups: Myelodysplastic syndrome
View

Congenital TTP: diagnosis and future management

Speakers: Johanna Kremer Hovinga Strebel
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

TTP in the setting of pregnancy

Speakers: Marie Scully
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Organ dysfunction in TTP

Speakers: Eric Mariotte
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Animal models of TTP

Speakers: Karen Vanhoorelbeke
Target: Health professionals
Subnetworks: Bleeding - Coagulation disorders
Disease Groups: Rare thrombotic disorder due to quantitative platelet anomaly (Low)
View

Lorem Ipsum

Target: Health professionals
Subnetworks: Bone marrow failure
Disease Groups: Acquired red cell aplasia
View

Preimplantation Genetic Testing for Rare Anaemias

Speakers: Marina Kleanthous
Target: Health professionals
Subnetworks: Red blood cell defects
Disease Groups: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Hereditary spherocytosis, Rare constitutional hemolytic anemia due to pyruvate kinase deficiency, Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD), Sickle cell disease and related diseases
View

CD30+lymphoproliferations

Speakers: Werner Kempf
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
View

Mycosis Fungoides

Speakers: Maarten Vermeer
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
View

Introduction to Cutaneous Lymphoma

Speakers: Rein Willemze
Target: Health professionals
Subnetworks: Lymphoid malignancies
Disease Groups: Primary cutaneous lymphoma
View

Euro Blood Net