ERN-EuroBloodNet is aware of the high impact of online activities on knowledge dissemination, especially in the filed of rare diseases. Thursday Webinars is a live online program, where each session is dedicated to different aspect and subgroup of rare blood diseases. Webinars are provided by experts in the field, and allow health professionals and patients to learn highly specialized knowledge without the need to travel and whenever they wish. In addition, topic focused webinars allow to tackle questions gathered from the audience in real time, providing the perfect environment to benefit from the most outstanding experts in the field.
Recorded sessions are available on EuroBloodNet's webiste and EuroBloodNet's EDU YouTube channel. There are 5 newly published webinars: 'Hereditary Stomatocytosis' provided by Dr. Immacolata Andolfo, 'Genetic counselling of Hemophilia' provided by Patricia Aguilar Martínez, 'Recommendations on Pyruvate Kinase Deficiency diagnosis' provided by Paola Bianchi, 'Diagnosis and Clinical management of rare forms of Hemochromatosis' provided by Domenico Girelli and 'Genetic predisposition to myeloid disorders: When to analyze it?' provided by Jude Fitzgibbon.