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Registration for Topic on Focus for Patients’ Organization on Cutaneous Lymphoma is open!

Registration for Topic on Focus for Patients’ Organization on Cutaneous Lymphoma is open!

2021-04-09
Registration for Topic on Focus for Patients’ Organization on Cutaneous Lymphoma is open!

The comprehensive webinar program on CL targeting patients’ associations will start the 26th of April

ERN-EuroBloodNet Topic on Focus for patients' organizations, coordinated in collaboration with the Lymphoma Coalition, Cutaneous Lymphoma Foundation, France Lymphoma Espoir and Eurordis, will start the 26th of April.

It aims to disseminate very innovative topics related to Cutaneous Lymphoma among patients' organizations in order to give visibility to the medical services available in Europe, last quality of life cutting-edge advances in the field of this very rare condition and its treatments options.

For registering to the Online educational program please, click on: /education-2/patients/webinars/topic-on-focus-for-patients-organizations/topic-on-focus-cutaneous-lymphoma/topic-on-focus-for-patients-organizations-cutaneous-lymphoma/

There will be 6 sessions, once per month on Monday, from 5 pm to 6 pm (CET). Each session will be moderated by a duo of an expert physician and a patient representative, who will elaborate the session together.

PROGRAM

  • 26/04/2021
    How to connect patients in Europe to CL experts via the ERN (Services available at national or  European level, Virtual Board, CPMS), Prof. Martine Bagot and Pierre Aumont.
     
  • 31/05/2021
    Introduction to cutaneous lymphomas, the two prevalent subtypes: Mycosis Fungoides and Sézary Syndrome, Diagnosis and staging, Prof Maarten Vermeer and Mieke de Leeuw.
     
  • 28/06/2021
    Introduction to Cutaneous Lymphomas, other subtypes, diagnosis and staging, Prof. Antonio Cozzio and Susan Thornton
  • 19/07/2021
    Treatment options available in Europe: Skin directed therapy, Systemic therapy and Clinical trials, Prof. Rudolf Stadler and Guy Bouguet.
     
  • 13/09/2021
    Quality of life: Fatigue, Itch and Skin care, Psychological impact, Prof. Julia Scarisbrick and Jenni Burrows.
  • 18/10/2021
    Impact of treatments on quality of life, Prof. Pietro Quaglino and Keturah Harris.

REGISTRATION TO THE PROGRAM