News
RADeep last press release is available!
2023-01-29
Discover the lasts news about this project!
RADeep is the European patients registry on Rare Anaemia Disorders (RADs) collecting data from both new and already existing registries across the European Union, as well as from individual Healthcare providers.
It aims to map at the European level the diagnostic methods, demography, survival rate, main clinical features and treatments of RADs patients. In the future, the collected data aims at providing better care to patients affected by these rare diseases.
On the 10th of November 2022, RADeep held its first Data Access Committee meeting in Barcelona.
Discover all the details of the project, and the people involved in the last press release!