ERN-EuroBloodNet Results Presented in Events

The dissemination of activities and outcomes achieved by the ERNs is a cornerstone to ensure a wide impact among the Rare disease community, including health professionals, patients and other stakeholders. In 2022, ERN-EuroBloodNet actions and results have been presented acknowledging the ERN in the following events:

Date of the Event	Slot in the Agenda	Event	Emplacement of the Event	Representatives
26th-28^th January 2022		ASCAT 2022	Online	Mariangela Pellegrini
8th-10th February 2022	Patient-centred Research for Rare diseases - ERICA WP3 Patient Centred Expert Working Group		Online	María del Mar Mañú Pereira and Mariangela Pellegrini
2th March 2022	Le reti europee e il loro impatto sulle attività assistenziali e sulla qualità della vita dei pazienti - Responsabili reti ERN	Malattie Rare e Best Practice: il Policlinico e le sue Reti Europee	Online	Wilma Barcellini
10^th March 2022	Welcome and Introduction	Belgian Red Blood Cell Day	Online	Béatrice Gulbis
10^th March 2022	Covid-19 in sickle cell disease patients, the European registry experience	Belgian Red Blood Cell Day	Online	María del Mar Mañú Pereira
18^th March 2022	Introducing a national reference center approved ERN-EuroBloodNet	Scientific Event for CTCL 2022
15^th May 2022	PROMS experience report & ERICA WP 3	ERKnet Annual Meeting	Online	Mariangela Pellegrini
10th June 2022	ERN-EuroBloodNet European Registry of Patients Affected by Red Blood Cell Disorders and Covid-19	EHA2022 Congress	Hybrid (Austria)	Pablo Velasco
12^th June 2022	Radiomics and Artificial Intelligence for Identification and Monitoring of Silent Cerebral Infarcts in Sickle Cell Disease: First Analysis from the Genomed4all European Project	EHA2022 Congress	Hybrid (Austria)	Raffaella Colombatti
21^st June 2022	WP3 "Patient Centered Research in Rare Diseases"	ERICA 2nd General Assembly	Hybrid	María del Mar Mañú Pereira and Mariangela Pellegrini
29^th Aprile 2022	La ricerca e gli European Reference Networks, reti di riferimento europee	Garantire Salute e Inclusione Sociale Alla Persona con Malattia Rara	Online	Loris Brunetta
30^th May 2022		V Meeting degli HCP italiani che partecipano ad ERN-EuroBloodNet	Online	Achille Iolascon, Domenica Taruscio, Pierre Fenaux, Béatrice Gulbis, Mariangela Pellegrini, Loris Brunetta, Paola Bianchi, Matteo Della Porta and María del Mar Mañú Pereira
20th-22^nd October 2022	ERN Sessions	ASCAT 2022	United Kingdom	Noémi Roy. Raffaella Colombatti and Mariangela Pellegrini