ERN-EuroBloodNet, the ERN on Rare Hematological Diseases (RHDs)
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Diseases groups

Rare constitutional aplastic anemia (Other than BDA, DKC, FA, SDS)(CAA)

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Patients organizations that work in collaboration of ERN-EuroBloodNet to improve the quality of life of patients living with diseases are included in this disease group.

Discover the Guidelines & other CDMTs of the ERN-EuroBloodNet repository that target this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Discover the research developed in the ERN-EuroBloodNet targeting this disease group.

List of the ERN-EuroBloodNet projects and links focused on this disease.

All the diseases included in this disease group are listed below!

Find further information relevant to this disease group produced by external institutions.

Reference Centers & Experts
Patients Organizations supporting group
Guidelines & other CDMTs
Education Health Professionals
Education Patients
Research & Publications
Ongoing projects
Diseases covered
External useful links

Education Health Professionals

Past webinars

Upcoming webinars

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Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars

PROMs and PREMs in ENROL

01/03/2023 17:00
Target: Patients
Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies
Disease Groups:Transversal

Upcoming webinars

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Videos

Onsite trainings

Research & Publications

Observational study

Clinical trial

Publication

Diseases covered

  • Hereditary thrombocytopenia with normal platelets-hematological cancer predisposition syndrome
  • Autosomal thrombocytopenia with normal platelets
  • WT limb-blood syndrome
  • Autosomal dominant aplasia and myelodysplasia
  • Hereditary isolated aplastic anemia
  • Pancytopenia-developmental delay syndrome
  • Monocytopenia with susceptibility to infections

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