Rare constitutional aplastic anemia (Other than BDA, DKC, FA, SDS) |

Education Health Professionals

Past webinars
Upcoming webinars
Videos
Preceptorships
Onsite trainings

Past webinars

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

03/05/2024 13:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

02/05/2024 17:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

08/05/2024 08:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

Upcoming webinars

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Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars
Upcoming webinars
Videos
Onsite trainings

Past webinars

ENROL: Networking on European Registries in Rare Hematological Disorders

15/02/2023 17:00

Speakers: María del Mar Mañú Pereira, Loris Brunetta

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

How ENROL Supports Clinical Research

22/02/2023 17:00

Speakers: Béatrice Gulbis, Maria Piggin

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

PROMs and PREMs in ENROL

01/03/2023 17:00

Speakers: Mariangela Pellegrini, Jacqueline Dubow

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Upcoming webinars

No entries found

Videos

Onsite trainings

Research & Publications

Observational study
Clinical trial
Publication

Observational study

Clinical trial

Publication

Ongoing projects

Diseases covered

Hereditary thrombocytopenia with normal platelets-hematological cancer predisposition syndrome
Autosomal thrombocytopenia with normal platelets
WT limb-blood syndrome
Autosomal dominant aplasia and myelodysplasia
Hereditary isolated aplastic anemia
Pancytopenia-developmental delay syndrome
Monocytopenia with susceptibility to infections

Rare constitutional aplastic anemia (Other than BDA, DKC, FA, SDS)(CAA)

Education Health Professionals

Past webinars

Data integration and analysis (Artificial Intelligence)

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

Upcoming webinars

Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars

ENROL: Networking on European Registries in Rare Hematological Disorders

How ENROL Supports Clinical Research

PROMs and PREMs in ENROL

Data integration and analysis (Artificial Intelligence)

Upcoming webinars

Videos

Onsite trainings

Research & Publications

Observational study

Clinical trial

Publication

Ongoing projects

Diseases covered

External useful links

Observational study

Clinical trial

Publication

Euro Blood Net