Members

Name: Marjon

Surname: Cnossen

Academic title: MD PhD

Link to personal website:

https://www.erasmusmc.nl/nl-nl/sophia/patientenzorg/zorgverleners/cnossen-marjon

Which is your area of expertise for the "Disease/group of diseases"?

• Prevention and genetic counseling
• Diagnostics
• Treatment and care

Specify your expertise for the "Disease/group of diseases" (eg SCT, Molecular diagnosis):

Molecular diagnosis, HSCT, etc.

Disease groups:

Acquired idiopathic sideroblastic anemia Acquired red cell aplasia Acute lymphoblastic leukemia Acute myeloid leukemia (AML) Acute promyelocytic leukemia AL Amyloidosis Alpha- thalassaemia diseases Atypical hemolytic-uremic syndrome Beta-thalassemia and related diseases Blackfan-Diamond anemia Bloom syndrome Castleman Disease Chronic myeloid leukemia Congenital dyserythropoietic anemia Constitutional megaloblastic anemia Constitutional sideroblastic anemia (excluding Severe congenital hypochromic anemia with ringed sideroblasts) Diffuse large B-cell lymphoma, NOS Diffuse large B-cell lymphoma, Other than NOS Dyskeratosis congenita and related disorders Fanconi anemia Follicular lymphoma Hairy cell leukemia Hemoglobinopathy (Other than THAL and SCD) Hemophilia A Hemophilia B Hereditary elliptocytosis Hereditary spherocytosis Hereditary stomatocytosis Hodgkin lymphoma Hypereosinophilic syndrome Indolent B-cell lymphomas / Non follicular Mantle cell lymphoma Mastocytosis Mature T-cell neoplasms non primary cutaneous Extra nodal Mature T-cell neoplasms non primary cutaneous leukemic Mature T-cell neoplasms non primary cutaneous Nodal Myelodysplastic syndrome Myelodysplastic/myeloproliferative disease Myeloid neoplasms associated with eosinophilia and abnormality of PDGFRA, PDGFRB or FGFR0 Myeloid neoplasms with germline predisposition or inherited Myeloproliferative neoplasm (Other than Chronic myeloid leukemia and Primary myelofibrosis) Other agressive B-cell neoplasms Paroxysmal nocturnal hemoglobinuria Plasma cell neoplasm Porphyrias Posttransplant lymphoproliferative disorders (PTLD) Primary cutaneous lymphoma Primary inherited erythrocytosis / Congenital polycythemia Rare acquired aplastic anemia (Other than PNH) Rare constitutional aplastic anemia (Other than BDA, DKC, FA, SDS) Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD) Rare constitutional hemolytic anemia due to pyruvate kinase deficiency Rare hemorrhagic disease due to constitutional coagulation factors defects (Other than Hemophilia and Von Willebrand disease) Rare hemorrhagic disorder due to a constitutional platelet anomaly Rare hemorrhagic disorder due to an acquired platelet anomaly Rare thrombotic disorder due to a coagulation factors defect Rare thrombotic disorder due to quantitative platelet anomaly (High) Rare thrombotic disorder due to quantitative platelet anomaly (Low) Secondary polycythemia Shwachman-Diamond syndrome Sickle cell disease and related diseases Typical hemolytic-uremic syndrome Von Willebrand disease

Which is your patient age coverage?

• Pediatrics
• Adults
• Ageing

Member Representative

Subnetwork representative:

• Red blood cell defects