Hereditary stomatocytosis |

Education Health Professionals

Past webinars
Upcoming webinars
Videos
Preceptorships
Onsite trainings

Past webinars

Hereditary Stomatocytosis

24/09/2020 17:00

Speakers: Immacolata Andolfo

Target: Health professionals

Subnetworks:Red blood cell defects

Disease Groups:Hereditary stomatocytosis

GenoMed4All & ERN-EuroBloodNet for precision medicine in hematology

13/09/2023 12:30

Speakers: Federico Álvarez, Victoria Gutiérrez Valle

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Use cases challenges: MDS, SCD and MM

27/09/2023 12:30

Speakers: Matteo Giovanni Della Porta, Sophie Wintrich, María del Mar Mañú Pereira, Raffaella Colombatti, Marina Martello

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Myelodysplastic syndrome, Sickle cell disease and related diseases, Transversal

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Upcoming webinars

No entries found

Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars
Upcoming webinars
Videos
Onsite trainings

Past webinars

ENROL: Networking on European Registries in Rare Hematological Disorders

15/02/2023 17:00

Speakers: María del Mar Mañú Pereira, Loris Brunetta

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

How ENROL Supports Clinical Research

22/02/2023 17:00

Speakers: Béatrice Gulbis, Maria Piggin

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

PROMs and PREMs in ENROL

01/03/2023 17:00

Speakers: Mariangela Pellegrini, Jacqueline Dubow

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

GenoMed4All & ERN-EuroBloodNet for precision medicine in hematology

13/09/2023 12:30

Speakers: Federico Álvarez, Victoria Gutiérrez Valle

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Use cases challenges: MDS, SCD and MM

27/09/2023 12:30

Speakers: Matteo Giovanni Della Porta, Sophie Wintrich, María del Mar Mañú Pereira, Raffaella Colombatti, Marina Martello

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Myelodysplastic syndrome, Sickle cell disease and related diseases, Transversal

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Hereditary stomatocytosis(HSt)

Education Health Professionals

Past webinars