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Visit EuroBloodNet’s EDU YouTube channel to see newly added 25 EuroBloodNet webinars!

Visit EuroBloodNet’s EDU YouTube channel to see newly added 25 EuroBloodNet webinars!

2021-07-17
Visit EuroBloodNet’s EDU YouTube channel to see newly added 25 EuroBloodNet webinars!

Sessions from the different ERN-EuroBloodNet Webinars programs are available on EuroBloodNet’s EDU YouTube channel

ERN-EuroBloodNet is aware of the high impact of online activities on knowledge dissemination, especially in the field of rare diseases. EuroBloodNet Webinars are live online programs, where each session is dedicated to different aspects and subgroups of rare blood diseases and addressed to health professionals or patients associations, patients, and caregivers. Webinars are provided by experts in the field, health professionals, or patients advocates and allow participants to learn highly specialized knowledge without the need to travel and whenever they wish. In addition, topic-focused webinars allow tackling questions gathered from the audience in real-time, providing the perfect environment to benefit from the most outstanding experts in the field.

Recorded sessions are available on EuroBloodNet's website and EuroBloodNet's EDU YouTube channel. There are 25 newly published webinars:  

EuroBloodNet Thursday webinars for health professionals

  1.  Thursday Webinar - Treatment of Amyloidosis by Prof. Dr. Stefan O. Schönland 
  2.  Thursday Webinar - Treatment of AML in the elderly. Intensive or not? by Prof. Gert Ossenkoppele
  3.  Thursday Webinar - When is molecular analysis useful in MDS? by Prof. Valeria Santini
  4.  Thursday Webinar - Management of Blackfan Diamond anemia in adults by Dr. Thierry Leblanc
  5.  Thursday Webinar: Vaccine-induced Immune Thrombocytopenia and Thrombosis (VITT) by Prof. Mike Makris 
  6.  Thursday Webinar - Newborn screening for sickle cell disease in Europe: recommendations by Dr. Raffaella Colombatti.
  7.  Thursday Webinar - Selecting β-thalassemia Patients for Gene Therapy: A Decision-making Algorithm by Prof. Dr. Gian Luca Forni
  8.  Thursday Webinar - Primary VitreoRetina Lymphoma - Diagnostic and Management Challenges by Dr. Carole Soussain and Dr. Denis Malaise

EuroBloodNet Topic on Focus on Cutaneous Lymphoma for Patients Organizations (POs)

  1. EuroBloodNet's Topic on focus on CL for POs: How to connect patients in EU to CL experts via the ERN by Prof. Martine Bagot and Pierre Aumont
  2. EuroBloodNet's Topic on focus on CL for POs: Introduction to cutaneous lymphomas, the two prevalent subtypes: Mycosis Fungoides and Sézary Syndrome, Diagnosis and staging by Prof. Maarten Vermeer and Ms. Mieke de Leeuw
  3. EuroBloodNet's Topic on focus on CL for POs: Introduction to Cutaneous Lymphomas, other subtypes, diagnosis and staging by Prof. Antonio Cozzio and Susan Thornton
  4. EuroBloodNet's Topic on focus on CL for POs: Treatment options available in Europe: Skin directed therapy, Systemic therapy and Clinical trials by Prof. Rudolf Stadler and Guy Bouguet

ERN-EuroBloodNet Topic on Focus on Myelodysplastic Syndromes for Patients - this program is in French-

  1. EuroBloodNet Topic on Focus for patients MDS: Diagnostic et classification des SMD by Prof. Michaele Fontenay et Annie Kolb
  2. EuroBloodNet Topic on Focus for patients MDS: SMD de bas risque by Prof. Sophie Park et Jacqueline Dubow 
  3. EuroBloodNet Topic on Focus for patients MDS: Greffe de Moelle dans les SMD by Prof. Marie Robin, Raymond Mallarte

Patient Webinars on CDA I and CDA II

  1. Patients Webinars - Webinar on CDA I and CDA II by Noémi Roy, Roberta Russo and Paola Bianchi

ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals

  1. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: TTP and ADAMTS13: Pathophysiology (ADAMTS13-related TTP pathophysiology) by Prof. Dr. Agnès Veyradier
  2. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Animal models of TTP provided by Prof. Dr. Karen Vanhoorelbeke
  3. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Diagnostic workup for TTP and TMA syndromes; pitfalls by Dr. Ygal Benhamou
  4. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Present and future of TTP treatment provided by Prof. Dr. Paul Coppo
  5. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Caplacizumab and treatment of iTTP without plasma exchange provided by Prof. Dr. Paul Brinkkötter
  6. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Organ dysfunction in TTP provided by Dr. Eric Mariotte
  7. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: Congenital TTP: diagnosis and future management provided by Prof Dr. Johanna Kremer Hovinga Strebel
  8. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: TTP in the setting of pregnancy provided by Prof. Dr. Marie Scully
  9. ERN-EuroBloodNet Topic on Focus on Thrombotic for Health Professionals: TTP in the eldery provided by Dr. Jehane Fadlallah