Transversal for Red blood cell defects |

Education Health Professionals

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Past webinars

Indication of splenectomy

22/05/2025 17:00

Speakers: Maria Domenica Cappellini

Target: Health professionals

Subnetworks:Red blood cell defects

Disease Groups:Transversal for Red blood cell defects

GenoMed4All & ERN-EuroBloodNet for precision medicine in hematology

13/09/2023 12:30

Speakers: Federico Álvarez, Victoria Gutiérrez Valle

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

03/05/2024 13:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

02/05/2024 17:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

The ENROL Registry Module for the Collection of Annual Counts of RHDs Patients

08/05/2024 08:00

Speakers: Maria de los Angeles Rodríguez Sánchez

Target: Health professionals

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

Introductory session (the road so far)

18/09/2024 12:30

Speakers: Federico Alvarez

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Standardization, bias and data quality – focus on trustworthy, clinically relevant AI

25/09/2024 12:30

Speakers: Enrico Giampieri

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Regulatory framework

02/10/2024 12:30

Speakers: Nathan Lea

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

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ENROL: Networking on European Registries in Rare Hematological Disorders

15/02/2023 17:00

Speakers: María del Mar Mañú Pereira, Loris Brunetta

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

How ENROL Supports Clinical Research

22/02/2023 17:00

Speakers: Béatrice Gulbis, Maria Piggin

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

PROMs and PREMs in ENROL

01/03/2023 17:00

Speakers: Mariangela Pellegrini, Jacqueline Dubow

Target: Patients

Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies

Disease Groups:Transversal

GenoMed4All & ERN-EuroBloodNet for precision medicine in hematology

13/09/2023 12:30

Speakers: Federico Álvarez, Victoria Gutiérrez Valle

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30

Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Data integration and analysis (Artificial Intelligence)

08/11/2023 12:30

Speakers: Gastone Castellani, Tiziana Sanavia, Patricia Alonso, Jacqueline Dubow

Target: Patients, Health professionals, Patients organizations

Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal

Introductory session (the road so far)

18/09/2024 12:30

Speakers: Federico Alvarez

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Standardization, bias and data quality – focus on trustworthy, clinically relevant AI

25/09/2024 12:30

Speakers: Enrico Giampieri

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Regulatory framework

02/10/2024 12:30

Speakers: Nathan Lea

Target: Patients, Health professionals, Patients organizations

Subnetworks:Myeloid malignancies, Red blood cell defects

Disease Groups:Transversal for Myeloid malignancies, Transversal for Red blood cell defects

Transversal for Red blood cell defects

Education Health Professionals

Past webinars

Upcoming webinars

Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars

Upcoming webinars

Videos

Onsite trainings

Research & Publications

Observational study

Clinical trial

Publication

Ongoing projects

Diseases covered

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Observational study

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