Webinars' programs that are specifically addressed to patients intend to increase the awareness of a specific rare hematological disease among patients' advocates and patients' associations.
Many more sessions are going to resume in September. Check below the upcoming webinars and register to receive the link!!
ERN-EuroBloodNet Topic on Focus for patients' organizations is coordinated in collaboration with the Lymphoma Coalition, Cutaneous Lymphoma Foundation, France Lymphoma Espoir, and Eurordis. It aims to disseminate very innovative topics related to Cutaneous Lymphoma among patients' organizations to give visibility to the medical services available in Europe, last quality of life cutting-edge advances in the field of this very rare condition, and its treatments options.
ERN-EuroBloodNet Topic on Focus Myélodysplasies: a topic of interest for patients and their families, is co-organized by the ERN with CCM (the French patient association Connaître et Combattre les Myélodysplasies), the GFM (Groupe Francophone de Myélodysplasies). It aims to disseminate very important topics related to MDS to the patient community and their families: the latest advances in treatment and diagnosis, improving the quality of life in the field of this rare disease. For French Speakers.