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Topic on Focus on Sickle Cell Disease for patients and their families

Topic on Focus on Sickle Cell Disease for patients and their families

2021-12-28
Topic on Focus on Sickle Cell Disease for patients and their families

An educational online program on Sickle Cell Disease for patients and their families will be launched in January 2022!

ERN-EuroBloodNet Topic on Focus on Sickle Cell Disease (SCD) for patients and their families aims to disseminate very important topics related to SCD to the patient community and their families: the latest advances in treatment and diagnosis, improving the quality of life in the field of this rare red blood cell disease.

The 11 Topics of this program have been chosen by people living from SCD answering the ERN-EuroBloodNet Survey on Prioritization of Educational Needs.

Topics are:

  1. New therapies for SCD
  2. Adult Patients Quality of Life
  3. Hydroxyurea and fertility
  4. Neurological Damages in SCD
  5. Neonatal Screening
  6. Gestational Risks
  7. SCD and immune disease
  8. Genetic Counselling and embryo selection
  9. Bone Marrow Transplant: survival infertility and other complications
  10. Polyuria and Enuresis: kidney damages
  11. Priapism

For more information and for registering to the program click here