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Diseases groups

Rare thrombotic disorder due to quantitative platelet anomaly (Low)

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Patients organizations that work in collaboration of ERN-EuroBloodNet to improve the quality of life of patients living with diseases are included in this disease group.

Discover the Guidelines & other CDMTs of the ERN-EuroBloodNet repository that target this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Discover the research developed in the ERN-EuroBloodNet targeting this disease group.

List of the ERN-EuroBloodNet projects and links focused on this disease.

All the diseases included in this disease group are listed below!

Find further information relevant to this disease group produced by external institutions.

Education Health Professionals

Past webinars

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30
Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia
Target: Patients, Health professionals, Patients organizations
Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects
Disease Groups:Transversal

Animal models of TTP

31/03/2021 16:00
Speakers: Karen Vanhoorelbeke
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Present and future of TTP treatment

28/04/2021 16:00
Speakers: Paul Coppo
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Organ dysfunction in TTP

26/05/2021 16:00
Speakers: Eric Mariotte
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

TTP in the elderly

07/07/2021 16:00
Speakers:  Jehane Fadlallah
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

TTP in the setting of pregnancy

16/06/2021 16:00
Speakers: Marie Scully
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Congenital TTP: diagnosis and future management

30/06/2021 16:00
Speakers: Johanna Kremer Hovinga Strebel
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Pregnancy-associated HUS

27/10/2021 16:00
Speakers: Fadi Fakhouri
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

HSCT-associated TMA

10/11/2021 16:00
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Drug-associated TMA

24/11/2021 16:00
Speakers: Steven Grangé
Target: Health professionals
Subnetworks:Bleeding - Coagulation disorders
Disease Groups:Rare thrombotic disorder due to quantitative platelet anomaly (Low)

Upcoming webinars

No entries found

Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars

PROMs and PREMs in ENROL

01/03/2023 17:00
Target: Patients
Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies
Disease Groups:Transversal

Data standardization and linkage (Standards & Federation)

04/10/2023 12:30
Speakers: Silvia Uribe Mayoral, Vincent Planat, Davide Piscia
Target: Patients, Health professionals, Patients organizations
Subnetworks:Lymphoid malignancies, Myeloid malignancies, Red blood cell defects
Disease Groups:Transversal

Upcoming webinars

No entries found

Videos

Onsite trainings

Research & Publications

Observational study

Clinical trial

Publication

Diseases covered

  • Congenital thrombotic thrombocytopenic purpura
  • Acquired thrombotic thrombocytopenic purpura