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Diseases groups

Paroxysmal nocturnal hemoglobinuria(PNH)

Find all the Reference Centers & Experts covering this disease group!

Patients organizations that work in collaboration of ERN-EuroBloodNet to improve the quality of life of patients living with diseases are included in this disease group.

Discover the Guidelines & other CDMTs of the ERN-EuroBloodNet repository that target this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Repository of educational material produced in the ERN-EuroBloodNet focused on this disease group.

Discover the research developed in the ERN-EuroBloodNet targeting this disease group.

List of the ERN-EuroBloodNet projects and links focused on this disease.

All the diseases included in this disease group are listed below!

Find further information relevant to this disease group produced by external institutions.

Education Health Professionals

Past webinars

CLINICAL CASE: Constitutional Bone Marrow Failure

05/04/2022 13:00
Speakers: Camilla Frieri
Target: Health professionals
Subnetworks:Bone marrow failure
Disease Groups:Rare acquired aplastic anemia (Other than PNH), Paroxysmal nocturnal hemoglobinuria

Acquired Aplastic Anemia: somatic mutations

31/05/2022 13:00
Speakers: Austin Kulasekararaj
Target: Health professionals
Subnetworks:Bone marrow failure
Disease Groups:Rare acquired aplastic anemia (Other than PNH), Paroxysmal nocturnal hemoglobinuria

CLINICAL CASE: Acquired Aplastic Anemia

28/06/2022 13:00
Speakers: Britta Höchsmann
Target: Health professionals
Subnetworks:Bone marrow failure
Disease Groups:Rare acquired aplastic anemia (Other than PNH), Paroxysmal nocturnal hemoglobinuria

CLINICAL CASE: Paroxysmal Nocturnal Hemoglobinuria

25/10/2022 13:00
Speakers: Morag Griffin
Target: Health professionals
Subnetworks:Bone marrow failure
Disease Groups:Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)

Upcoming webinars

No entries found

Videos

Preceptorships

Onsite trainings

Education Patients

Past webinars

Pregnancy for Aplastic Anemia and PNH

03/05/2023 17:30
Speakers: Britta Höchsmann, Alex Naylor
Target: Patients
Subnetworks:Bone marrow failure
Disease Groups:Paroxysmal nocturnal hemoglobinuria, Rare acquired aplastic anemia (Other than PNH)

PROMs and PREMs in ENROL

01/03/2023 17:00
Target: Patients
Subnetworks:Bleeding - Coagulation disorders, Bone marrow failure, Hemochromatosis and other iron disorders, Histiocytic Disorders, Lymphoid malignancies, Myeloid malignancies
Disease Groups:Transversal

Upcoming webinars

No entries found

Videos

Onsite trainings

Research & Publications

Observational study

Clinical trial

Publication

Diseases covered

  • Paroxysmal nocturnal hemoglobinuria